Tuesday Sep 13, 2022

011: The role of Precision Medicine within ultra-rare disease - David Rose & Guest host : Torie Robinson

The buzz around the potential of Precision Medicine continues as new technologies, more powerful computing and our ability to store, share and interpret Big Data increases.  On this podcast Steve Coldicott and Scott Buckler chat about all aspects of the industry with patients, healthcare industry and research professionals about creating personalised medicines for each and every one of us.

On today's episode, Steve welcomes our first guest presenter: Torie Robinson is host of the brilliant Epilepsy Sparks Insights Podcast and she's chatting with David Rose.  

Dave has Occipital Horn Syndrome, an ultra-rare disease effecting his heart, kidney, bladder, bowel and entire muscular-skeletal system.  He's the only person in the UK diagnosed with the disease.  During this chat, you'll hear more about the symptoms, and the how precision medicine has touched his life.

For more content, and to see many episodes of this podcast in video form, please visit our website: https://precisionmedicineforum.com/

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